childhood cancer

In my dreams you are 5 years old, you hair is the color of summer wheat and your eyes sparkle green in the light. You are laughing and running from me… looking over your shoulder waiting for me to catch you. I chase you but not too quickly, I love seeing your smile and how […]

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A boy and his wish – World of Warcraft

by Deena on March 4, 2012

What do you get when you mix online gaming, amusement parks, family and a chance encounter with NPH? One crazy, exhausting, and overwhelming humbling family trip, of course. So this trip request started about 2 years ago when Make a Wish contacted Owen to see what he would want to do if he could do […]

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“How are you doing?”    This is always the question that follows the first one, “How is Owen?”  “I’m fine” is always my reply. Truth is I’m not fine. I haven’t been fine since they diagnosed my son with cancer 2 years ago. Truth is I don’t know what I am any more… To say “I’m […]

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The Reasons We Walk…Childhood Cancer

by Deena on October 20, 2011

This past Sunday, Angela and I participated in the Northern Virginia CureSearch Walk in Fairfax, VA. It was actually a last minute decision on our part to do the walk. My son, Owen who is currently battling Osteosarcoma (bone cancer) had bi-lateral lung surgery the week prior to the walk and we weren’t sure if […]

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The Creating Hope Act

by Deena on October 12, 2011

Did you know that in the last 20 years only ONE drug has been initially approved by the FDA for any childhood cancer?  The only drugs available are “hand-me-down” drugs developed for adults.    Drugs that toxicity often leave children with a lifetime of challenges or impairments.  And did you know that 1/2 of all chemo-therapies […]

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September 17th is a date that will forever be ingrained in my head. It is the date I sat in a hospital room surrounded by family members while my son underwent 9 hours of surgery to remove a tumor from his right arm. Most people would probably remember the date of the original diagnosis… I […]

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